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Voices in the shadows: living with asthma and VCD/ILO

Published: January 27, 2024

Vocal cord dysfunction/inducible laryngeal obstruction (VCD/ILO) is a condition characterized by involuntary and intermittent closure of the vocal folds either during inhalation or exhalation, leading to breathing challenges. VCD/ILO is a significant comorbid condition associated with asthma. Understanding the impact of VCD/ILO among people with asthma is crucial to fostering effective communication between healthcare providers and patients.

In a recent issue of The Journal of Allergy and Clinical Immunology: In Practice, Majellano and colleagues explored the experience of living with asthma and coexisting VCD/ILO. Thirty adults with a confirmed asthma diagnosis and VCD/ILO were invited to participate in a one-to-one semi-structured interview. Thematic and content analysis revealed four interconnected themes: “trapped voice,” “altered life,” “looking for solutions,” “knowledge about VCD/ILO.” The “trapped voice” theme described participants experiencing a sensation of their voice being confined in their throat or abruptly interrupted while talking or singing. “Altered life” illustrated their challenges in communicating effectively or their tendency to shorten conversations.  “Looking for solutions” depicted the participants' diagnostic journey and their quest for understanding the cause of their symptoms. “Knowledge about VCD/ILO” described participants' lack of understanding and the existing uncertainty regarding whether asthma was the cause of their breathlessness.

VCD/ILO occurring alongside asthma presents a significant double disease burden. The study's results offer valuable insights into the patient experience of VCD/ILO, which can be utilized to enhance clinician understanding and support the adoption of personalized care approaches for affected individuals. Understanding the patient's viewpoint enables clinicians to tailor care to align with the patient's priorities.

The Journal of Allergy and Clinical Immunology: In Practice is an official journal of the AAAAI, focusing on practical information for the practicing clinician.

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