Patient Advocacy Organizations
The AAAAI places a high value on its relationships with patient advocacy organizations in support of our mutual concern for the needs of people with allergy, asthma & immunologic disease and their families. In particular, the AAAAI has an ongoing relationship with a group of organizations with whom we partner on various projects as needs and opportunities arise. We encourage you to visit these organizations’ websites for more information on their initiatives and missions.
Allergy & Asthma Network
Allergy & Asthma Network is the leading nonprofit organization whose mission is to end the needless death and suffering due to asthma, allergies and related conditions through outreach, education, advocacy and research. Since 1985, we have helped thousands of individuals and families with practical, real-life tips and solutions.
8229 Boone Blvd., Suite 260
Vienna, VA 22182-2661
Phone: (800) 878-4403
Fax: (703) 288-5271
http://www.allergyasthmanetwork.org
American Partnership for Eosinophilic Disorders (APFED)
APFED is a non-profit organization dedicated to patients and their families coping with eosinophilic disorders. APFED strives to expand education, create awareness, and support research while promoting advocacy among its members.
P.O. Box 29545
Atlanta, GA 30359
Phone: (713) 493-7749
mail@apfed.org
www.apfed.org
Asthma & Allergy Foundation of America (AAFA)
AAFA is a not-for-profit, voluntary health organization dedicated to improving the quality of life for people with asthma and allergies and their caregivers through education, research and advocacy.
8201 Corporate Drive, Suite 1000
Landover, MD 20785
Phone: (800) 7-ASTHMA (800) 727-8462 or (202) 466-7643
Fax: (202) 466-8940
www.aafa.org
Alaska Chapter: www.aafaalaska.com
Michigan Chapter: www.aafamich.org
New England Chapter: www.asthmaandallergies.org
St. Louis Chapter: www.aafastl.org
Campaign Urging Research for Eosinophilic Disease (CURED)
It is the hope of CURED that we raise substantial funding, as well as, public awareness to aid in research for this complex disease. Presently, very little is known about Eosinophilic Disorder. It is our heart-felt belief and mission that CURED can make a difference for the individuals and their families who are touched by this disorder. Our ultimate goal is that everyone affected by this condition is CURED!
P.O. Box 32
Lincolnshire, IL 60069
Phone: (847) 361-3292
ellyn@curedfoundation.org
www.curedfoundation.org
Follow us on Facebook and Twitter
Food Allergy & Anaphylaxis Connection Team (FAACT)
FAACT’s mission is to educate, advocate, and raise awareness for all individuals and families affected by food allergies and life-threatening anaphylaxis. Whether it’s keeping children safe at school, responding to food allergy bullying, dealing with workplace issues, or simply taking the family out for a bite to eat, FAACT has all the facts you need to manage food allergies and stay healthy. Food allergies affect approximately 15 million Americans, including 6 million children. FAACT is here to support you in managing your food allergies – today, tomorrow, and into the future. FAACT is your voice for food allergy awareness.
P.O. Box 511
West Chester, OH 45071
Phone: (513) 342-1293
Fax: (513) 342-1239
info@foodallergyawareness.org
www.foodallergyawareness.org
FARE
FARE works on behalf of the 15 million Americans with food allergies, including all those at risk for life-threatening anaphylaxis. This potentially deadly disease affects 1 in every 13 children in the U.S. – or roughly two in every classroom. Formed in 2012 as a result of a merger between the Food Allergy & Anaphylaxis Network and the Food Allergy Initiative, FARE’s mission is to ensure the safety and inclusion of individuals with food allergies while relentlessly seeking a cure. We do this by providing evidence-based education and resources, undertaking advocacy at all levels of government, increasing awareness of food allergy as a serious public health issue and funding world-class research that advances treatment and understanding of food allergies.
FARE National Headquarters
7925 Jones Branch Drive, Suite 1100
McLean, VA 22102
Phone: (800) 929-4040
info@foodallergy.org
www.foodallergy.org
Immune Deficiency Foundation (IDF)
The IDF is the national patient organization dedicated to improving the diagnosis, treatment and quality of life of persons with primary immunodeficiency diseases through advocacy, education and research.
110 West Road., Suite 300
Towson, MD 21204
Phone: (800) 296-4433 or (410) 321-6647
Fax: (410) 321-9165
www.primaryimmune.org
International FPIES Association (I-FPIES)
I-FPIES is a non-profit organization that funds research and provides education, support and advocacy for patients and families affected by Food Protein-Induced Enterocolitis (FPIES). We strive to bridge the gap between patient, family and physician while also bringing non-IgE allergies to the forefront of medical interest on par with IgE allergies. I-FPIES is the worldwide leader in resources and information for FPIES patients and families and is supported by a multi-disciplinary, international panel of Medical Advisors.
330 River Avenue
Point Pleasant Beach, NJ 08742
contact@fpies.org
www.fpies.org
The Mast Cell Disease Society (TMS)
The Mast Cell Disease Society is dedicated to providing multi-faceted support to patients, families and medical professionals in our community and to leading the advancement of knowledge and research in mast cell diseases through education, advocacy and collaboration. We offer support groups for patients, as well as a free virtual education course for physicians in addition to research grants. TMS has led efforts to identify and share the experiences and needs of patients with mast cell diseases, including mastocytosis, mast cell activation syndromes and hereditary alpha tryptasemia.
The Mastocytosis Society, Inc.
P.O. Box 416
Sterling, MA 01564
Phone: (508) 842-3080 or (952) 905-6778
Fax: (508) 842-2051
info@tmsforacure.org
www.tmsforacure.org
US Heredity Angioedema Association (HAEA)
The US HAEA is a non-profit patient advocacy and research organization. Our organization provides a wide range of patient services, educational programs and peer-to-peer support for patients with all forms of hereditary angioedema and their caregivers. We further advance our mission to help HAE patients achieve life-long health via our Scientific Registry – Patient Driven Research for a Cure.
The US Hereditary Angioedema Association
c/o Janet Long, Vice President
10560 Main Street
Suite PS40
Fairfax City, VA 22030
www.haea.org