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Lay Organizations
ALLERGY & ASTHMA NETWORK/MOTHERS OF ASTHMATICS (AANMA)
AANMA is dedicated to helping people affected by allergies and asthma through education, advocacy, community outreach and research. AANMA offers educational materials, monthly award-winning publications, a toll-free help line, Hispanic outreach, and a Website, www.breatherville.org. Visit or call 1-800-878-4403.2751 Prosperity Avenue, Suite 150
Fairfax, VA 22031
Phone: (800) 878-4403
Fax: (703) 573-7794
www.aanma.orgAMERICAN LATEX ALLERGY ASSOCIATION
The mission of the American Latex Allergy Association is to create awareness of latex allergy through education and to provide support to individuals who have been diagnosed with latex allergy.PO Box 198
Slinger, WI 53086
Phone: (262) 677-9707
E-mail: alert@latexallergyresources.org
www.latexallergyresources.org
Follow us on Twitter and FaceBook.AMERICAN PARTNERSHIP FOR EOSINOPHILIC DISORDERS (APFED)
APFED is a non-profit organization dedicated to patients and their families coping with eosinophilic gastrointestinal disorders. APFED strives to expand education, create awareness, and support research while promoting advocacy among its members.3419 Whispering Way Drive
Richmond, TX 77469
Phone: (713) 498-8216
E-mail: apfed@sbcglobal.net
www.apfed.orgASTHMA & ALLERGY FOUNDATION OF AMERICA (AAFA)
The Asthma and Allergy Foundation of America is a not-for-profit, voluntary health organization dedicated to improving the quality of life for people with asthma and allergies and their caregivers through education, research and advocacy.1233 20th Street, NW, Suite 402
Washington, DC 20036
Phone: (800) 7-ASTHMA (800) 727-8462 or (202) 466-7643
Fax: (202) 466-8940
www.aafa.orgAlaska Chapter: www.aafaalaska.com
California Chapter: www.aafa-ca.com
Greater Kansas City Chapter: www.aafakc.org
Maryland/Washington DC Chapter: www.aafa-md.org
Michigan Chapter: www.aafamich.org
New England Chapter: www.asthmaandallergies.org
Texas Chapter: www.aafatexas.org
St. Louis Chapter: www.aafastl.org
FOOD ALLERGY & ANAPHYLAXIS NETWORK (FAAN)
The Food Allergy & Anaphylaxis Network (FAAN) Founded in 1991 by Anne Muņoz-Furlong, the Food Allergy & Anaphylaxis Network (FAAN) is the world leader in information about food allergy, a potentially fatal condition that afflicts approximately 12 million Americans, or one out of every 25. A nonprofit organization based in Fairfax, Va., FAAN has members in the U.S., Canada, and 58 other countries. It is dedicated to increasing public awareness of food allergy and its consequences, to educating people about the condition, and to advancing research on behalf of all those affected by it. FAAN provides information and educational resources about food allergy to patients, their families, schools, health professionals, pharmaceutical companies, the food industry, and government officials. For more information, please visit FAAN at www.foodallergy.org, www.faankids.org, and www.faanteen.org.11781 Lee Jackson Highway, Suite 160
Fairfax, VA 22033
Phone: (800) 929-4040 or (703) 691-3179
Fax: (703) 691-2713
www.foodallergy.org
faan@foodallergy.orgFOOD ALLERGY INITIATIVE (FAI)
FAI is the largest private source of funding for food allergy research in the United States. The organization's mission is to support research to find a cure for life-threatening food allergies; clinical programs to improve diagnosis and treatment; and educational initiatives and public policy to make the world safer for those affected.1414 Avenue of the Americas, Suite 1804
New York, NY 10019
Phone: (212) 207-1974
www.faiusa.org
info@faiusa.org
US HEREDITARY ANGIOEDEMA ASSOCIATION (HAEA)
The US HAEA is a non-profit patient advocacy and research organization. We are dedicated to expediting US approval of safer and more effective HAE therapies as well as facilitating a Scientific Registry for research toward a cure. Our Patient Representatives provide a wide range of services that include clinical trial placement, physician referrals, education, and individualized patient case management.The US Hereditary Angioedema Association
c/o Janet Long, Vice President
Seven Waterfront Plaza
500 Ala Mona Blvd., Suite 400
Honolulu, HI 96813
www.haea.orgIMMUNE DEFICIENCY FOUNDATION (IDF)
Devoted to research and education in primary immune deficiency diseases, IDF has established chapters across the country. On behalf of those with primary immune deficiency diseases, IDF promotes and supports scientific research in the causes, prevention, and treatments; promotes and supports training in medical research and clinical treatment; coordinates and disseminates information; and conducts educational campaigns to increase public awareness.25 West Chesapeake Avenue, Suite 206
Towson, MD 21204
Phone: (800) 296-4433 or (410) 321-6647
Fax: (410) 321-9165
www.primaryimmune.orgTHE MASTOCYTOSIS SOCIETY (TMS)
The Mastocytosis Society is a nonprofit organization dedicated to supporting patients affected by Mastocytosis/ Mast Cell Activation Disorders as well as their families, caregivers, and physicians/health care providers through research, education, and advocacy. TMS offers educational materials, a quarterly newsletter, a written resource guide for physicians/health care providers who need assistance in diagnosing a patient with a suspected mast cell disorder, an email list, and support groups. We hold an annual conference that starts off with a Walk-a-thon to raise funds for mast cell research and education, and is attended by patients and mast cell disease specialists. For more information, please visit our website at www.tmsforacure.org .The Mastocytosis Society
P.O. Box 511
Plainville, CT 06062
Phone: (508) 842-3080 or (413) 862-4556
Fax: (508) 842-2051
vslee@tmsforacure.org
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