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Academy News: September 2006
Lay Organizations
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Allergy & Asthma Network Mothers of Asthmatics (AANMA)
2751 Prosperity Ave., Suite 150
Fairfax, VA 22031
Phone 800-878-4403
Fax (703) 573-7794
www.aanma.org
E-mail aanma@aol.com |
 AANMA and the Consumer Health Alliance for Safe Medication (CHASM) continue to make progress against unlawful pharmacy manufacturing of nebulizer medications.
Senator Grassley (R-IA) wrote a 13-page letter to the Food and Drug Administration (FDA) and Centers for Medicare and Medicaid Services (CMS) summarizing concerns, and requesting answers related to information AANMA provided his office about unlawfully manufactured nebulizer medications that are being substituted for FDA-approved medications and reimbursed with taxpayer dollars.
AANMA also presented evidence at a briefing hosted by Senator Edward Kennedy (D-MA) and Congressman Henry Waxman (D-CA) showing that state laws and pharmacy boards, and federal policies do not protect patients.
Read more at www.breatherville.org/CHASM.
 Latex Allergy Awareness Week will be observed October 1-7. A state proclamation has been received from Governor Jim Doyle to officially designate the week in Wisconsin.
Companies and manufacturers are invited to partner with the American Latex Allergy Association in an effort to distribute latex allergy education, and to promote latex-free products during this week of observance. Options for distribution include a Web site link and newsletter advertising space. Please visit www.latexallergyresources.org as Latex Allergy Awareness Week approaches to learn about the available latex allergy educational programs and materials.
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The American Partnership for Eosinophilic Disorders (APFED)
3419 Whispering Way Drive
Richmond, TX 77469
Phone (713) 498-8216
Fax (281) 238-9436
www.apfed.org
E-mail mail@apfed.org |
 APFED will fund support for the first International Gastrointestinal Eosinophil Research Symposium to be held October 17-18. The symposium will be attended by an outstanding group of international scientists who focus their work on the role of eosinophils in GI diseases. The event will focus on developing diagnostic guidelines and organizing a research agenda for collaborative studies.
A new section of the APFED Web site, www.apfed.org, is dedicated to healthcare professionals. Professionals will find updates on grants, research news and upcoming CME events, as well as applications for Trainee Travel Awards. Patient education materials on Eosinophilic Esophagitis (EE), Eosinophilic Gastrointestinal Disorders (EGID), hypereosinophilic syndrome (HES) and Churg Strauss Syndrome (CSS) can be ordered, as well as children’s educational materials.
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Asthma and Allergy Foundation of America (AAFA)
1233 20th St. NW, Suite 402
Washington, DC 20036
Phone (202) 466-7643
Fax (202) 466-8940
www.aafa.org |
 AAFA’s new educational CD, called “Getting the Most from Your Asthma Medications,” contains all the materials you need for a one-hour presentation to patients, parents or other caregivers. The CD contains ready-made Microsoft PowerPoint slides, a presenter’s guide, sign-up sheets, handouts and more. Topics covered in the presentation include basics about asthma medications, levels of severity, treatment using an asthma management plan and more. View the catalog at www.aafa.org or call (800) 7-ASTHMA to order copies of the CD for your office.
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Food Allergy & Anaphylaxis Network (FAAN)
11781 Lee Jackson Highway, Suite 160
Fairfax, VA 22030
Phone (800) 929-4040
Fax (703) 691-2713
www.foodallergy.org |
 Tennessee has recently passed legislation requiring state-wide food allergy management plans for schools. Similar legislation exists in Massachusetts and Connecticut. FAAN continues to push for federal guidelines which would be available to states interested in developing food allergy plans.
As part of our efforts to educate teens with food allergies, FAAN is hosting a teen summit November 3-5 in Arlington, VA. Teens and their parents will participate in a weekend of educational seminars, interactive workshops, and opportunities to share experiences and strategies. Let your teen patients know about this unique opportunity. Additional information is available online at www.faanteen.org.
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Immune Deficiency Foundation (IDF)
40 West Chesapeake Avenue
Suite 308
Towson, MD 21204
Phone (800) 296-4433
www.primaryimmune.org |
 IDF President Marcia Boyle and Jordan Orange, MD, PhD, FAAAAI, Chair of the AAAAI Primary Immunodeficiency Diseases Committee, testified on the impact of Medicare reimbursement of IVIG on patient access, at the House Ways and Means Subcommittee on Health Hearing in July, in Washington D.C. Speaking on behalf of patients, Boyle implored the Subcommittee to take emergency action to restore access to IVIG in all sites of care. Congressman McCrery thanked Boyle for the leadership role IDF has taken on the access to IVIG issues. He said that without the efforts of IDF, Congress would not understand the level of devastation that has occurred for this community.
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