Thank you for your inquiry.
Eosinophilic gastritis is a reasonably rare condition; I have no personal experience with it and I am not personally aware of any center that deals specifically with this disorder. However, there are several institutions in the United States which have published on eosinophilic gastroenteropathies. The two that come to mind are:
1. The Digestive Health Institute, Section of Pediatric Gastroenterology, Gastrointestinal Eosinophilic Diseases Program, Children's Hospital, Denver, Colorado.
Also there has been an influx of pediatric allergists interested in food allergy in this department including Drs. Dan Atkins and David Fleischer. I am not sure, however, whether they would be willing to see an adult at this institution.
2. There have been publications on eosinophilic gastroenteropathies from the Mayo Clinic in Rochester, Minnesota, from the Department of Internal Medicine. I think that you might also consider this institution.
Finally, as you know, Dr. Marc Rothenberg is an internationally known expert in eosinophilic esophagitis. Although you have clearly stated that this condition is not eosinophilic esophagitis, Dr. Rothenberg may know of other centers in the United States because of his interest in eosinophilic disorders in general. Therefore I am asking Dr. Rothenberg to let us know whether or not there are other institutions to be considered. When I receive his response, I will forward it to you.
Thank you again for your inquiry.
Phil Lieberman, M.D.
Below is the response we received from Dr. Marc Rothenberg. Thank you again for your inquiry and we hope this response is helpful.
Phil Lieberman MD
Response from Dr. Rothenberg:
EG typically is associated with atopy and peripheral blood eosinophilia. If the patient has none of these, including normal IgE, I would be concerned about another process such as infection, including H pylori. It could also be a drug induced response, underlying malignancy (e.g. lymphoma), collagen vascular disorder, part of IBD, etc.
We do see adult patients with EG, if there is an interest in a second opinion.
Marc E. Rothenberg MD, PhD
Director, Division of Allergy and Immunology Director, Cincinnati Center for Eosinophilic Disorders Professor of Pediatrics Cincinnati Children's Hospital Medical Center University of Cincinnati College of Medicine