Lay Organizations
The AAAAI places a high value on its relationships with patient advocacy organizations in support of our mutual concern for the needs of people with allergy, asthma & immunologic disease and their families. In particular, the AAAAI has an ongoing relationship with a group of organizations with whom we partner on various projects as needs and opportunities arise. We encourage you to visit these organizations’ websites for more information on their initiatives and missions.
ALLERGY & ASTHMA NETWORK/MOTHERS OF ASTHMATICS (AANMA)
AANMA is dedicated to helping people affected by allergies and asthma through education, advocacy, community outreach and research. AANMA offers educational materials, monthly award-winning publications, a toll-free help line, Hispanic outreach, and a website, www.breatherville.org. Visit or call 1-800-878-4403.
8201 Greensboro Drive, Suite 300
McLean, VA 22102
Phone: 800-878-4403
Fax: 703-288-5271
www.anma.org
AMERICAN LATEX ALLERGY ASSOCIATION
The mission of the American Latex Allergy Association is to create awareness of latex allergy through education and to provide support to individuals who have been diagnosed with latex allergy.
PO Box 198
Slinger, WI 53086
Phone: (262) 677-9707
E-mail: alert@latexallergyresources.org
www.latexallergyresources.org
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AMERICAN PARTNERSHIP FOR EOSINOPHILIC DISORDERS (APFED)
APFED is a non-profit organization dedicated to patients and their families coping with eosinophilic gastrointestinal disorders. APFED strives to expand education, create awareness, and support research while promoting advocacy among its members.
3419 Whispering Way Drive
Richmond, TX 77469
Phone: (713) 498-8216
www.apfed.org
ASTHMA & ALLERGY FOUNDATION OF AMERICA (AAFA)
The Asthma and Allergy Foundation of America is a not-for-profit, voluntary health organization dedicated to improving the quality of life for people with asthma and allergies and their caregivers through education, research and advocacy.
8201 Corporate Drive, Suite 1000
Landover, MD 20785
Phone: (800) 7-ASTHMA (800) 727-8462 or (202) 466-7643
Fax: (202) 466-8940
www.aafa.org
Alaska Chapter: www.aafaalaska.com
California Chapter: www.aafa-ca.com
Greater Kansas City Chapter: www.aafakc.org
Maryland/Washington DC Chapter: www.aafa-md.org
Michigan Chapter: www.aafamich.org
New England Chapter: www.asthmaandallergies.org
Texas Chapter: www.aafatexas.org
St. Louis Chapter: www.aafastl.org
FOOD ALLERGY & ANAPHYLAXIS NETWORK (FAAN)
The Food Allergy & Anaphylaxis Network (FAAN) Founded in 1991 by Anne Muñoz-Furlong, the Food Allergy & Anaphylaxis Network (FAAN) is the world leader in information about food allergy, a potentially fatal condition that afflicts approximately 12 million Americans, or one out of every 25. A nonprofit organization based in Fairfax, Va., FAAN has members in the U.S., Canada, and 58 other countries. It is dedicated to increasing public awareness of food allergy and its consequences, to educating people about the condition, and to advancing research on behalf of all those affected by it. FAAN provides information and educational resources about food allergy to patients, their families, schools, health professionals, pharmaceutical companies, the food industry, and government officials.
11781 Lee Jackson Highway, Suite 160
Fairfax, VA 22033
Phone: (800) 929-4040 or (703) 691-3179
Fax: (703) 691-2713
faan@foodallergy.org
www.foodallergy.org
www.faanteen.org
www.faankids.org
FOOD ALLERGY INITIATIVE (FAI)
FAI is the largest private source of funding for food allergy research in the United States. The organization's mission is to support research to find a cure for life-threatening food allergies; clinical programs to improve diagnosis and treatment; and educational initiatives and public policy to make the world safer for those affected.
515 Madison Avenue, Suite 1912
New York, NY 10022
Phone: (212) 207-1974
www.faiusa.org
info@faiusa.org
US HEREDITARY ANGIOEDEMA ASSOCIATION (HAEA)
The US HAEA is a non-profit patient advocacy and research organization. We are dedicated to expediting US approval of safer and more effective HAE therapies as well as facilitating a Scientific Registry for research toward a cure. Our Patient Representatives provide a wide range of services that include clinical trial placement, physician referrals, education, and individualized patient case management.
The US Hereditary Angioedema Association
c/o Janet Long, Vice President
Seven Waterfront Plaza
500 Ala Mona Blvd., Suite 400
Honolulu, HI 96813
www.haea.org
IMMUNE DEFICIENCY FOUNDATION (IDF)
The IDF is the national patient organization dedicated to improving the diagnosis, treatment and quality of life of persons with primary immunodeficiency diseases through advocacy, education and research.
40 West Chesapeake Ave., Suite 308
Towson, MD 21204
Phone: (800) 296-4433 or (410) 321-6647
Fax: (410) 321-9165
www.primaryimmune.org
THE MASTOCYTOSIS SOCIETY (TMS)
The Mastocytosis Society is a nonprofit organization dedicated to supporting patients affected by Mastocytosis/ Mast Cell Activation Disorders as well as their families, caregivers, and physicians/health care providers through research, education, and advocacy. TMS offers educational materials, a quarterly newsletter, a written resource guide for physicians/health care providers who need assistance in diagnosing a patient with a suspected mast cell disorder, an email list, and support groups. We hold an annual conference that starts off with a Walk-a-thon to raise funds for mast cell research and education, and is attended by patients and mast cell disease specialists.
The Mastocytosis Society, Inc.
P.O. Box 129
Hastings, NE 68902-0129
Phone: 508-842-3080 or 413-862-4556
Fax: 508-842-2051
tmsbod@tmsforacure.org
www.tmsforacure.org